RACE FOR 7: BANGALORE WALKS FOR RARE DISEASES ~ Raising Awareness for Rare Diseases Rare Disease Policies for Rare Disease patients ~ Bengaluru, February 25th, 2018 : Lending their collective voice to the rare disease community in India, an enthusiastic 3500+ participants, including 40 rare disease patients and their caregivers, took part in Race for 7 in Bengaluru and were joined by another 1500+ in Mumbai. Race for 7 is an awareness walk/run organized by the Organization for Rare Diseases (ORDI), an NGO committed to addressing the challenges faced by those living with rare diseases. The objective of Race for 7 is to raise awareness for the 7000 documented rare diseases and the estimated 70 million patients in India suffering from a rare disease. The event was flagged off by Kannada actors Shwetha R Prasad and Natraj S. Bhat and IQVIA Managing Director, Naz Haji, at St. Joseph’s Indian High School. Rare Disease patients who participated...
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